PCOS
48 Replies
shann0664 - January 4

:D Yayyy we are starting to some more ladies here to chat, well everyone I am starting clomid this month as soon as AF appears, I am very excited can't wait to get this rolling, ckelly how long did it take you to get preggo with clomid? If you dont mind me asking? Did you have an IUI? I was told I can try for a few months the old fashioned way I dont want to have to IUI :'(

 

ckelly1018 - January 5

Shannon I was on Metformin for 3 months and added 100 mg of Clomid for my 3rd month and that was the month I got pregnant. So really only one month of Clomid. I did not have an IUI. We just bd every other day until I knew I had O'd. And it worked. Hopefully it won't very many cycles for you either.

 

HeatherMak - January 6


Shann,

I hope you're able to get pg naturally, so I wish you the best of luck. Just curious, though: Why don't you want IUI?

HeatheMak

 

Chrystal - January 7

Hello Ladies! I am so glad to find this site! I was diagnosed with PCOS when I was 13, I am 22 now and I only know one other person with it. Anyway, let me explain my situation. I don't have a period at all unless I am on medication and all of my previous doctors have given me birth control pills. My new doctor gave me 2 weeks worth of Provera (14 pills) last month and I started AF after 18 days. I've been thinking about starting either Clomid or Provera, but I'm a tad nervous about the Provera, I've heard some very negative things. Does anyone have any advice? I became pregnant in Feb. of 2002, but a gave birth to a stillborn baby girl on Sep.11 of 2002, we've been trying to conceive since then. Awaiting your response!

 

ckelly1018 - January 8

Chrystal - first let me say how sorry I am for the loss of your little girl. You should know that you have a higher risk of miscarriage when you have PCOS. The metformin is supposed to help with that as well. As for opinions on medications. I have done Clomid several times and never had any real side effects. What does your dr suggest?

 

Chrystal - January 8

Crystal. She suggested that Clomid would be perfect for me, but I'm not sure she know completely what she is talking about because I just started seeing her and when I told her I had PCOS, I had to explain it to her, she didn't know anything about it. I'm thinking about switching to a different doctor, someone who has been here for years and knows a little something about everything and see what he says. I will keep ya posted!

 

wannababy - January 9

HeatherMak,
Thank you so much for your feedback; It makes me feel so much better to hear from others are in the same situation as myself.
Since I last posted I had an appt with my RE......he seems to be pretty positive that we can move forward when my next cycle begins....either tamoxifen/IuI or injectible/IUI.... I am trying to keep my prayers and spirits high. thank you so much for your positive words. I will keep you posted.
I think this site/group is wonderful!
Thanks
Stephanie

 

shann0664 - January 10

Hi everybody just an update cause I am so excited, AF has arrived yayyyy so I guess I start 100mg clomid saturday, I cant wait just a question my script says take 2 tablets daily for days 5-9 do I take them together?? I am not sure lol I am so excited I hope this is the month for us!!!!! Baby dust to all!!!

 

shann0664 - January 11

Hi everyone I went to the doctor this morning for my cd3 ultrasound and I have no cysts and ovarie look really good, just waiting for bloodwork results

 

HeatherMak - January 11


YAY!!

I hope this is it for you!!

* * * B A B Y D U S T * * *


HeatherMak

 

Kelly28 - January 12

Hello all - I haven't been on here in a couple of months. I just found out that I have PCOS, and I don't like my RE. I got the results over the phone but really don't know much about PCOS. I am frustrated! I did 2 months of clomid before the RE started all of my tests. I have an appt with my NP at the gyno bcuz I am not happy with the RE. If anyone has any advice I would really appreciate it! Thank you :)

 

HeatherMak - January 12


Kelly,

Trust your instincts and find another doctor. There are doctors out there, I'll help you find one if you like...just find another doctor.

Here is the link to the American Society of Reproductive Medicine's search tool:

http://www.asrm.org/sea
rch/providersearch.html

Searc
h
until you find at least two other doctors in your area, make appointments with them, talk with them, tell them your experience and find one you trust and LIKE. It's important that you like this person. Ask how news is delievered...usually the nurse will deliver news but you can ask them questions. THAT IS THE MOST IMPORTANT PART OF YOUR VISIT TO ANY DOCTOR...ASK ASK ASK TONS OF QUESTIONS!!! Find out what you have, what it means for you, treatment options, long-term consequences, etc...do your research on the internet before you get there, take notes with you, take copious amounts of notes during the meeting...this is THE most important doctor's visit of your life. If possible ask someone to go with you since it's easier to retain info when you're not quite so nervous.

I truly wish you the best of luck with this. I know it's awful, and I'm sorry you've been treated so...but it's a great lesson for you on how you DO NOT want to be treated in the future. You're allowed to put your foot down with a doctor. They are NOT gods. They are humans who went to school longer than you or I and that is it. Reallly. Question your doctor. Question EVERYTHING. This is YOUR body and ultimately YOUR BABY so YOU have SAY in your treatment. If someone isn't treating you or your baby fairly, let them know and ask them to fix it. You have rights so do not let your doctor do whatever or prescribe whatever without knowing fully why...you must be an informed patient...gone are the days when you didn't question your doctor...so be an advocate for your own health care and the care of your baby and get a new doc. Remember - the office staff of any doctor's office is usually trained to run interference. So, if you really need to speak wtih the doctor, page him/her after hours, make an appointment so you can talk...whatever. You have a right to speak wtih your doctor when you have a concern. Office people in the doctor's office are the wait-staff of a restaurant - they don't want you to talk to the chef unless it is ABSOLUTELY necessary. Well, sometimes it is and they don't get that...so do what you must to talk with your doctor. That's a question for your new RE - how easily can I access YOU or further information about my condition!

That's it for my pep talk. I've got to go. PLEASE keep us posted and let us know what happens - you deserve better.


HeatherMak

 

Kelly28 - January 12

Hi HeatherMak -

Thank you so much for your reply! I will see what the nurse at the obgyn says and see who she recommeds. Another question - anyone with ance issues? That is my main problem, I have some darker hair on my arms that is really annoying me also. I dont have the weight issues that seems to affect so many with PCOS, I think someone mentioned Lean PCOS?? And with the acne, is there other treatments besides what they treat "regular" acne for??

Any help is greatly appreciated! I go to the nurse on the 19th so I hope I will get some answers - I need them :)

How are things with you HeatherMak??

 

shann0664 - January 21

Hi everyone I went for my cd12 scan I had a 16mm follicle on my left ovary an nice looking 14mm on my right an some other small ones but the two the doc said could do it, I am going for another scan monday before O to see how big they are then,
I am so excited everyone keep your fingers crossed for me please..

 

HeatherMak - January 21


Kelly,

As for the acne, well, I'm not sure what to tell you. When I was 22, I was given Acutane...and I am STILL feeling the ill effects of that horrid drug. I'll be 38 in March. So, I'd see a dermatologist for your acne and explain to them that you have PCOS and you're on all this medication and trying to get pregnant and blah blah blah. As with any doctor, find a GOOD derm and find one who will listen to you. I found mine by looking at the "top docs" article in the paper.

Things are okay with me. DH and I can't decide if we want to try again or what we want to do for #2. I'm not thrilled about going through all the shots and pills and procedures again...I really don't think I'm up to it again. And the pain I had during pregnancy was horrid, so I'm not sure I'm able to do this again. And, frankly, it breaks my heart. I am so filled with sadness about it and I just really never thought it would happen. I thought, like so many of us infertiles do, that when you have a baby things are fine. But, like so many others: once an infertile, always an infertile...and I'm robbed of the family I wanted...like so many others.

Yes, I do have a beautiful son whom I adore. But, we always wanted more children. If we weren't infertile, this would NEVER be an issue - we'd have as many children as we wanted and never think twice about it! But, because of infertility, I'm told "be happy with the one you got" and all I want to do is punch them. THEY never had to "just be happy" - they got to have the families they wanted. Yet, somehow, I'm being selfish by wanting one more child. What a terrible double standard...one that I'm forced to smile about and deal with as MY problem.

So, that's how I am. Sad. Every day is such a joyful day with my son and I love him so much...I would just like for him to have a sibling.

I guess God will show us how we are to get the family we've always dreamed about, so that is what I will pray for. Thanks for asking, Kelly...sorry for the long, dour reply.

I hope everyone here is well and I look forward to all your updates and good news!!

HeatherMak

 

Kelly28 - January 21

Hello! HeatherMak I am sorry you are sad, I know the feeling all too well. There are better days than others, thats for sure. You have some big decisions ahead of you and its unfortunately not that simple for any of us on here - oh if it were! And to think how many 16 year old girls will get pregnant today - thats so hard to figure out.

I went to the NP on Friday and she is wonderful, she has PCOS and is pregnant right now - took her 11 years this round, they told her it wouldnt happen!! So I am now on Metamorphin and will take clomid once the period drugs make it come on. UGH! She said that the metamorphin will help my acne and that the Derm cant do much more for me - to give this 3 months and I will see a big change in my skin - its not horrible to anyone else but I hate it - makes me even more sad... I have done accutane and I actually loved it and will do it again once I have a baby (being positive here!). The only side affect I had was just really dry skin while I was on it. I guess we are all different. Seems that this Metamorphin is really hard on the stomach...but I will do what it takes :)

I will see how all of this goes. All of my other tests have come back good so I am really praying this can happen on these meds, if not, I will be just sick. And its so hard to be around all these people I know that are pregnant or just had a baby...I know that is selfish but its really tough.

Try to stay positive and know that the decision you make will be the right one :)

Thank you so much for your replies...

 

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