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Topic: Lupus Anticoagulant AND MTHFR (Read 508 times) |
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KBell
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I have had 2 m/c and I was just barely diagnosed with MTHFR and Lupus Anitcoagulant. I've already read a lot on these forums about MTHFR. Which is great. My dr already has me on Folamin. I'm waiting for my appt with the perinatologist. While I am waiting I wanted to get more info. I just haven't heard much about the Lupus Anticoagulant. I have a son who is about to turn 2 and then I had 2 m/c when we started ttc #2.
Is there anybody out there that has both of these diagnosis? I haven't received the notes on my blood tests, so I don't know all the details yet.
Any info would be much appreciated!!
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carriecap
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Re:Lupus Anticoagulant AND MTHFR
« Reply #1 on: 11/10/07, 17:40 » |
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well, lol its about time i found out that i am not alone in this!!! we had 5 miscarriges in a 4 year span, and just reciently i found out that i have lupus anticoagulant. i started taking a baby asprin when i found out i was preg in augest, and now i am embarking on my 5th month of pregnancy, its the farthest ive ever been, they all ended at about 6-8 weeks. i too have an appt with the perinatal center in syracuse, NY in about 2 weeks, and im so glad im finally getting an awnser. but i am still very nervous about making it to full term, even theough the doctor says the baby and i are doing just fine its a girl by the way, so hang in there, it is possible, something which i never thought possible, and i would love to hear about your appointment so maybe we can share in this problem together... Carrie
Ccapucilli@aol.com
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KBell
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Re:Lupus Anticoagulant AND MTHFR
« Reply #2 on: 11/10/07, 20:49 » |
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Hi Carrie,
So good to hear about another person with this too. Congrats on your length of pregnancy with your girl!! I hope the rest of the pregnancy goes smoothly for you.
I had my appt with the perinatologist back in Sept. But before I met with him I read more on it and started myself on a baby asprin. My meeting with the dr. was good. He said my levels for LA were just out of the range. I am getting retested for it again next week (after a 12 week wait). If it shows up again he suggested that when I get pregnant again I go to the dr earlier than normal and start watching a lot closer. In the mean time he said to probably continue the baby asprin and the Folamin (for the MTHFR)... both could only help with the a pregnancy. He said that everyone has a 15% chance of miscarrying on each pregnancy and he thought that I hit that each time and believes that if I try again I would have a normal pregnancy. He doesn't whole heartedly think that the MTHFR or the LA caused the miscarriages. But I think that there is some link so I am glad to stay on the baby asprin and Folamin even if it gets me better odds about staying prego.
I would love to hear what our perinatologist has to say.
Good luck,
Kellie
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dreamerfor3
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Re:Lupus Anticoagulant AND MTHFR
« Reply #3 on: 12/12/07, 14:17 » |
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Hi carrie,
I too went through this. I was put on Lovenox, baby aspirin and folic acid. Everything finally went smooth and we have a wonderful baby boy now. Good luck!
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tabi
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Re:Lupus Anticoagulant AND MTHFR
« Reply #4 on: 02/04/08, 20:58 » |
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I also have those two as well as elevated levels of anti phosphatydylserine, and mthfr (just one copy). I am doing IVF#3 and will be put on Lovenox if I get pg. Are either of you on cod live oil supplements? I went to a nutritionist and she wants me to take a daily dose but hearing conflicting things about it.
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afine
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Re:Lupus Anticoagulant AND MTHFR
« Reply #5 on: 02/11/08, 21:51 » |
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I JUST FOUND OUT I HAVE MTHFR MUTATION AND I AM 7 WEEKS PREGNANT. I HAVE HAD 4 MISCARRIAGES AND HAVE 2 HEALTHY CHILDREN. I NEVER HEARD OF THIS AND DONT EVEN KNOW WHAT IT MEANS. IS MY PREGNANCY AT RISK? CAN I STILL HAVE A HEALTHY BABY?
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