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   Author  Topic: Lovenox and pregnancy  (Read 94830 times)
mellisa
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Re:Lovenox and pregnancy
« Reply #1410 on: 04/26/08, 18:21 »
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i am currently 14 weeks
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mellisa


1st pregnancy stillborn [36 weeks male]
2nd pregnancy 27 weeks and on 40mg lovenox
mellisa
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Re:Lovenox and pregnancy
« Reply #1411 on: 04/26/08, 18:24 »
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i am currently 14 weeks
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mellisa


1st pregnancy stillborn [36 weeks male]
2nd pregnancy 27 weeks and on 40mg lovenox
Rosie
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Re:Lovenox and pregnancy
« Reply #1412 on: 04/29/08, 17:45 »
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Hi,
I'm new on this site, just found it last week after my 1st visit to an hematologist and knowing that she wants me to take Lovenox and baby aspirin when I get pregnant again.

I have had 2 misc. (8 and 10 wks)   The doctors couldn't find anything wrong after several blood test: no lupus, no antibodies, no anticardilipoin IgG or IgM,etc.  I was seeing a "group" of Gyn/OB and the last one told me that the cause of my misc. is two fibroids that needed to be removed by surgery.

After a second opinion, the new dr. sent me to an hematologist after receiving the results for 16 blood tests more.  She defenitely said "no surgery" until we find out more.  A lot of women have fibroids and they usually don't cause problems.  I never have had any issues with my periods, etc, so it is hard to tell.  Anyway...

I am heterozygous positive MTHFR C677T, but my homocysteine levels are OK, actually they are a little lower that the normal range.  She said not to worry about this result.  My ONLY problem is that the lipoprotein a (Lpa) level is too high.  Protein C antigen is just a little low, so she did more tests including Protein C activity to check it.

She said that I have to take Lovenox and baby aspirin when I get pregnant again.  However, after reading and reading, I can't find anyone taking Lovenox b/c of lipoprotein levels being too high.  Any ideas or comments?

Heterozygous positive MTHFR C677T, causes high homocysteine levels and that causes clot problems, but if mine are OK and she said this result is not a problem, then why I need to take Lovenox?  Wouldnt be the baby aspiring enough?

She said that Niacin helps to reduce lipoprotein levels, but if I plan to get pregnat then Lovenox + baby aspirin is the way to go.

I didn't know anything about all this until the appointment and I really learnt a lot reading posts here and some other information I found on line, but I can't find anyone in a similar situation than me, so it is hard to understand...  I am defenitely looking forward for the next appointment and if the diagnosis remains the same, I might look for a second opinion.

I would really appreciate your comments, if anybody knows something or is in a similar situation.  I can't find anyone with high lipoprotein a levels taking lovenox!

Thanks in advance and good luck!!
Rosie

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CLADesigns
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Re:Lovenox and pregnancy
« Reply #1413 on: 04/29/08, 18:01 »
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Rosie--I am double heterozygous positive.  I have one C677T and on A1298C.  And my high risk ob told me that I would have to take an extra vitamin called folgard(vitamin B complex and folic acid) along with my prenatal vitamin and a baby asprin everyday.  But she said that the shot would be treating something that I do not need to be treated for.  I am going to get a second opinion about it because I have seen a lot of women on this site have one or more MTHFR mutation(s) and are on Lovenox.  I would get a second opinion if you have any questions whether or not you should take the shot.
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1st son (Shawn) born via c-section at 29 weeks
2nd son (Jonathon) born via vbac at 20 weeks
Have not taken Lovenox yet.
kellyclarksson
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Re:Lovenox and pregnancy
« Reply #1414 on: 04/29/08, 23:58 »
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Yes, dh is military personnel.  He wasn't planned to be home until next year but there is a sparkling chance he might be home in time!
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Three 1st trimester m/c. 4th pregnancy on 30 mg lovenox twice a day due in August.  DH overseas.
CLADesigns
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Re:Lovenox and pregnancy
« Reply #1415 on: 04/30/08, 15:27 »
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That's great.  Once you see your husband with your child.....you fall in love with him all over again.  The pride that you see in his face is priceless.  It is an amazing moment.
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1st son (Shawn) born via c-section at 29 weeks
2nd son (Jonathon) born via vbac at 20 weeks
Have not taken Lovenox yet.
Watergazer
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Re:Lovenox and pregnancy
« Reply #1416 on: 04/30/08, 17:23 »
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Veroki: I'm still here. I am now up to about 160 lbs, which is 37 pounds gained since the beginning. I have slowed down the weight gain I think...we'll see. But I am uncomfortable with back pain and now I've started to have leg pains like charlie horses in my claves and usually at night at least one limb will go completely numb no matter what position it is in. If I put my dog on my lap my lap will also go numb. I just try to stay on the couch all day and not move around. I just want this to end so badly already.

Other than that and the waiting for it all to be over, family stress is always a constant since several people want to be present for the first couple weeks after the baby is born and insist on staying at our house even though we don't have room for everyone. In fact a couple of them want to stay in our house while we're at the hospital, so even when we aren't home...just waiting for us to come with the baby and then stay there for a couple weeks. Granted all our family live out-of-state but I don't even know some of their husbands who'd they'd bring along. It'll be complete chaos and no matter how nicely I try to say I just want it to be my husband and I, certain individuals won't hear of it and don't think I'll be able to handle the baby. Granted I didn't originally want a baby in my life but that doesn't mean I'm a complete moron on how to care for it. I am not maternal in the same sense that they are. I am not drooling over the cuteness of babies and I honestly don't like the baby smell, but that doesn't equate to my ability to parent. In point of fact the one person so adament about teaching me motherhood is my own mother, whom did NOT raise me and only came into my life after over a decade of not hearing from her. I was raised by my grandparents because she abandoned her kids...and she wants to tell ME I will need help with parenting and don't have the knowledge of caring for it that she does? And their lack of beliving that the baby won't be born with clubfoot...or that somehow prayer will prevent the problem which is PLAIN to see from the ultrasound photos is daunting. It's like nobody will hear of that either even though it's something we need to plan ahead for taking care of as parents and I tell people the baby will have casts. And even though I've requested nobody buy clothing with leggings or footies people plan to do so anyway! What a waste of money...I hope I get the reciepts so I can take them back because with a clubfoot baby you can't have clothing with legs.

But I rant. The docs want me to come in every 2 weeks now but I refuse to do so. I'll go when I want to and I'm not driving 4 hours for a 15 minute consultation and a belly measure. If I feel baby kicking then he's obviously doing fine. I do however go in for an ultrasound on the 9th and will know how much weight the baby has put on then.
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veroki
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Re:Lovenox and pregnancy
« Reply #1417 on: 04/30/08, 19:28 »
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watergazer~ looks like we both have issues!

i am freaking out so bad right now, so were saving money so i can take 12 weeks maternity leave and then we just found out last night that our property taxes increased way more than we expected, so the money we were saving for my leave now needs to be used to pay taxes. so this basically means im not getting a maternity leave, if i have the baby on a friday i need to be back at work that next monday! i was so looking forward to that maternity leave not to mention ive got the entire summer booked with family visiting from out of town to see the baby and also weekends where ill be expected to attend bridal showers, bachlorette partys, etc... its going to be one busy summer and i was counting on that maternity leave. i am beyond depressed...... i would ask my mom for help but shes already dropped serious cash on my new floors(i only bought the materials) and shes buying the baby furniture and providing food for my shower, shes already kinda complained about how much shes spent so i wouldnt dare ask her for more. and my inlaws are very generous and have given us money in the past but my mother-in-law just recently went on disablity from her job so im not entirly sure of where they stand finanically, plus we still owe them on a car they gave us, and we havent paid them in a long time so i would be super embaressed to ask them for money when i still owe them so much. weve had a rough couple of years financially, we filed for bankruptcy this past september so we dont have any credits cards and cant apply for any loans either. as you know this pregnancy wasnt planned so we were trying to scrimp by on what we could and im afraid the only thing that might help us at this point is if my DH can find some type of part-time job for the next 2 months. *sigh* at least i dont have to go back to work full time but still, i couldnt imagine not having the time to bond with my baby and get used to her before going back to work. this blows.
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26 yrs old : 11/30/06 1st pregnancy ended in fetal demise in utero @ 15 weeks(boy). heterozygous PAI-1 5G/4G Allele.
7/7/08~ baby girl with help from lovenox
bdantonio
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Re:Lovenox and pregnancy
« Reply #1418 on: 04/30/08, 19:50 »
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veroki you cnat apply for short term diability??  What state are you i does the state offer maternity pay?
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Watergazer
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Re:Lovenox and pregnancy
« Reply #1419 on: 05/01/08, 16:42 »
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Amazing how in other countries you get 6 months at minimum paid maternity leave and sometimes the husbands likewise get that...and here we just can't afford it. And on top of that you can take paid vacation time, which for other countries is around 5 weeks even for part-timers. OK, so I am mainly thinking France and Canada and Europe...but still. I am sorry to hear about your financial situation Veroki. My husband will get 2 weeks paid vacation time and since I don't want to use that all up in the hospital I'm sending him back to work after the baby is born in case this does go C-Section and I am in for several days. And being 2 hours away he won't be able to come see me after work either simply due to gas money, but we'll manage. The distance to Loyola is still way worth it compared to what hospitals we got here.

We were really hoping a lawsuit I have pending with the makers of the birth control patch, Ortho Evra, was going to go through. After all it nearly killed me...but now there's huge legal concerns blocking the way. Apparently there is this issue called Pre-emption which the drug companies are trying to get past in the supreme court which would mean that if a drug gets approved by the FDA, nobody can then sue for any liability or damages that product has caused, regardless that that company may have lied to get approved by the FDA in the first place and mislabeled their drug, and regardless the FDA does not do any drug testing on their own but relies on the honestly of the drug companies. I can't imagine this perverse idea of pre-emption is even being discussed since it effectively makes the FDA and drug companies infallible and not responsible for harms caused by drugs. This might be a huge blow to my case and the cases of other women who suffered, as well as anyone who ever has or will suffer from adverse effects from a drug. All the drug makers have to do is cook their books and fool the FDA, and once approved...no lawsuits can be placed against them. Hard to believe this country is even allowing this issue to go to court in the first place but it already has in the case of some medical devices...and pre-emption in those issues has won out so if say, a brand of pace-makers suddenly quits out on folks, oh well, the FDA approved it so even if it was defective, too bad for you, you can't sue.

Yet another wonderful pointer for living in America. The systems for checks and balances are slowly disappearing, along with many of our rights.

So while we had been pretty much sure-to-win our case now we may not even see a trial simply due to this, our case completely nullified on the spot. But you never know... so we'll have to make-due financially with what we can and keep living paycheck to paycheck. I was going to go back to work myself but doing the math on it meant that I'd only be working to pay for daycare (if daycare would even accept a baby with a slight disability in the first place) so I have quit my own job and will be a stay-at-home mom.

An idea however...you cn always start selling off anything you don't want on Ebay. You'd be amazed how often that has gotten me out of a crunch. And whatever any of you guys do, never put any medical bills on credit cards. So long as you pay something of what you owe, they can't come after you even if they do threaten to give your info to collection agencies. If you put stuff on a credit card, however, you're screwed. Somebody I know found that out the HARD way.
« Last Edit: 05/01/08, 16:50 by Watergazer » Report to moderator   Logged
TaraMay07
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Re:Lovenox and pregnancy
« Reply #1420 on: 05/02/08, 02:30 »
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Hello ladies, Sorry that it has been so long since I have last posted. Things on our end has been crazy since having our son, thank god everyday for him. I guess my question for the board is has any of your doctors told any of you ladies that have multipule blood isses that having anymore children is to risky. You see for those who do not remember or for the new comers I have MTHFR both mutations on each gene, Prothrombine Factor 2, and Factor 5. I was advised that with all these that I should be thankful for haing the two sons that I ave and call it quites. So after having Donovan in September I had my tubes tied, seeing as it is "to risky", but now I am having a hard time dealing with this. I mean I know my life is key to my childrens survival and that I am no good to them gone, but I really wanted another chance for a little girl. So I asked my dr about a serogant and she told me that the chances of going through fertility treatments were the same as if I was pregnant so it really wouldn't matter. That I would still be carrying a 75%+ chance of clotting. i just wonder if anyone else is going through this or has been told similar....Please help...

(Praying for all those carrying, hope for a wonderful fullterm delievery)
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bdantonio
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Re:Lovenox and pregnancy
« Reply #1421 on: 05/02/08, 08:49 »
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taramay the fertility drugs alone can give you blood clots?
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hafletcher05
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Re:Lovenox and pregnancy
« Reply #1422 on: 05/02/08, 15:14 »
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mellisa~ you only have 2 more weeks before they can tell what you are having, not too much longer.

watergazer~ Back pain and leg pain is very common in the later stages of pregnancy and I know how you feel, I had it too. I found out that when you get cramps in your legs if you pull your toes back toward you it will usually relieve the cramp. I know where you are coming from about family, I didnt want any help from my family at all either. I ended up calling and begging my mom to come help me and I have actually had her come back several more times. My mother in law also came and so did my grandmother. But I did have a c-section and my baby has colic so I needed it and was greatfull that they came. I do not blame you for not wanting to have your mom telling you how to be a parent when she was never there for you though, I am sure that is difficult. Just keep in mind you may end up wanting help in the end if you have a c-section or even difficult labor, especially if your baby has colic. I also hope that you do get compensation for the issues you had with ortho evra.

Veroki~ you do know that if you filed taxes this year you will receive a stimulus payment from the government, hopefully that will help out some. I do know how you fill, we have had numerous financial issues since we found out we were going to have a baby. They are very expensive. I hope it all gets better for you.

Just a little Update about Gracelyn:
Last time I posted I was talking about her having colic. Well I kept hearing people from my home town talking about a chiropractor that worked miracles for babys with colic, so we took her. He picked her up and he told me that she had disc in her spine that were out of place due to being cramped during the pregnancy . Those disc were pinching the nerve that controls her stomach and bowels. He said  that is normally what caused colic. So he put the disc in place and immediately she quit crying. I was amazed, I didnt even realize he had done anything to her he was just holding her and talking. She has been a completely different child since then, it is amazing. She even sleeps. He would not even accept payment. The nurses even told us that he sees about 20 babies a week. I never heard of such but it works.
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-Heather
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Re:Lovenox and pregnancy
« Reply #1423 on: 05/02/08, 18:19 »
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TaraMay,
The way my doctor explained it is that whatever your risk of clotting is now, it will double with pregnancy and will be 10 fold during the 6 weeks postpartum.  She actually told me to have 1 child, and then stop because that is too great a risk.  They are not even positive of what is the cause of my clotting.  I just have a history of stroke, and dvt.  Maybe you should consider adopting a little girl.I know its not what you want but your no good to anybody dead.
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aefthimiadis
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Re:Lovenox and pregnancy
« Reply #1424 on: 05/06/08, 12:16 »
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Hey ladies I have not been on in while.  I am now 33 weeks pregnant and everything is fine so far.  I have a question though.  My dr. told me I will not be switched to heparin (with all this recall crap about it) and that he would just have me stop lovenox at 36-37 weeks.  That is getting me nervous.  What I know is that you are either switched or induced which he is not planning either.  Any feedback will be helpful.  I am planning on speaking to my hematologist on Tuesday and see what she says about this.
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