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I may be just a little bit too early to be here, so if I am please forgive me.
I just found out last week that the blood clot I had about a year ago was not due to just birth control pills and being on bedrest for an injury to my leg and pneumonia, but probably those things plus the fact that I have a prothrombin mutation and MTHFR. Don't know my homocystine levels yet, but I am hoping to find out soon. I see a hematologist tomorrow, and I've discussed this with my ob/gyn who actually set up my tests.
Most of what we talked about was in light of the fact that my husband to be and I have our wedding soon, and then shortly after, will be starting our attempts for me to get pregnant in April. The ob/gyn says we'll talk about it more after the hematologist and I should feel free to ask him lots of questions, and we'll have a January pre-conception conference to set up our plan for April. The plan is most likely lovenox, extra vitamins, and possibly some low aspirin doses. She assures me that we're just setting up a plan to deal with what we know, and this isn't a negative thing, it is knowledge and a plan based on that knowledge to work against negatives.
I guess I'm wondering two things. First, what do you wish you'd known about lovenox and pregnancy with clotting factors that you've found out since you started down that road?
Second, since we're getting married soon, and we seem to know every pregnant woman with no complications or unusual pregnancy events in the free world, a few of those being due in the next few days, we seem to get a lot of when are you having kids, or from people who know we would like children, you have to do this as soon as possible, it is so great! You will love it! Strangely enough, this seems to be mostly from fathers and not the mothers in their 9th month. :) I know it must be great, I know that getting ready to meet your baby must be wonderful, but right now I guess I just want a little time to feel bad that I have some extra issues to deal with that are scary to me, so I can move on and be strong about knowing these are the steps I have to take to get to our children, and I might not enjoy them, but I will be brave enough to do them. So far I've just gone with a non-comittal answer like laughing and changing the subject to them, but I'm about ready to scream, "it won't be as easy for me as you, so pardon me if I'm scared and angry and want a little time and space to accept that!" Has anybody else dealt with that?
Maybe my real problem is rage disorder and not clotting. :) Anyway, I hope I have not disturbed anyone by being too early here and thanks very much for sharing. It helps to know that there are other people who deal with this successfully, and that are generous about sharing their courage with others. I am sending many positive thoughts and prayers for all of you.
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