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Dpete79563 - January 29th, 2007 11:49 AM

OK I have posted in the past few weeks about starting lovenox with this pregnancy my 5th-- (I have a 3 yr old, 1 ectopic, 1 early miscarriage and 1 blighted ovom miscarriage) I had a reaction to the lovenox and now am on helprin along with a my coctail of other things. I am 6 weeks now and saw the heartbeat today for the first time! This is a huge hurdle for me, and I know it still is a long raod from here, but I am so emotional. I had spotting the other day for a bit and dr saw a blood pocket today on the ultrasound and said it was bleeding probally from implantation and that it should go away and I will have more bleeding/spotting. Has anyone had this?
Also, has anyone tried heprin this early.. I know this is a lovenox forum...
Thanks
Dawn


Miicki - January 29th, 2007 12:20 PM

Colie:
Yea, it does seem a lot of us are having c- sections.. i'm not really thrilled at the thought of surgery while being on a blood thinner- i had a c-section w/my daughter & i probably will just schedule the 2nd b/c i'd like to be in control of the situation & plus i have a daughter. I don't want to go into delivery in the middle of the night and worry about that... so that is why i'm choosing to do it. Not sure of all of the others- I don't think most dr's let you choose if you want a c-section. There is probably a reason for it but it's not b/c we're on lovenox. You can have an epideral too from what i'm told.
Meganholly2- i asked my dr recently about checking levels of the blood b/c i'm on lovenox & he says they dont' need to do that. I'm on 40 mg once a day & it's not a huge dosage so maybe that is why too- but he says we don't need to check it. Heparin may be a different story i'm not sure.


Miicki - January 29th, 2007 12:24 PM

Depete- i didn't have any spotting w/my 4 yr old ( easy pregnancy, delivery, no complications) this time around is different- I've been on lovenox since almost day 1 after i ovulated- i had spotting for about the first 12 weeks on and off ( i had spotting w/my prior 4 m/c too which made me very nervous) maybe lovenox causes a little spotting, i do not know. I won't go on heparin til about 35 weeks- 10 weeks from now.
I think a lot of people are on heparin too- it's just a different form- it's so hard to compare to others b/c every dr tells us something different....
good luck


Dpete79563 - January 29th, 2007 1:17 PM

Good news and then something that makes me nervous... Just posted that I saw the heart beat today at 6 weeks for the first time... but then in the blood results my hcg has taken 6 days to double and progesteron has dropped from 39 to 23! I am waiting to hear back from drs office to ask if I should be worried. What do you all think?
Dawn


Miicki - January 30th, 2007 3:40 PM

Depete- i'm not sure about how those levels work---i hope everything works out ok for you!!
Michelle


veroki - January 30th, 2007 3:55 PM

hello everyone! im new here and im just so frustrated! let me begin with telling you my backgorund. im 25 years old and i got pregnant for the first time in august 06 at my almost 15 week checkup they could not find the baby's heartbeat, they tried with a doppler and then 3 u/s and pronouned the baby dead, they said i was too far along to have a d&c preformed and that it would be better for me to be induced and deliver the baby. on Nov. 30th i gave birth to a baby boy about the size of my hand and i will never forget that day for as long as i live. ive been walking around in a state of confusion and grief for the past 2 months because they hadnt found out the reason why this had happened. first the autopsy came back normal, then the genetic testing done on the fetus came back normal, i was overcome with more grief knowing my baby was fine and now hes dead. so the next step was for me to get tested for blood clotting disorders, i got tested and waited for the results for 2 weeks. my doctors never calls me so i end calling them and leaving a message. she calls me back at 10pm at night and leaves a message on my VOICEMAIL, telling me " i just wanted to let you know that it turns out you do have a clotting disorder and thats why the baby died, its no big deal it just means the next pregnancy you have to take a drug called Lovenox thats all, well call me back if you want."

ok...........CAN YOU FREAKING BELIEVE THIS DOCTOR!!!?? not only does she leave this on my v/m, but shes says it all nonchalantly like its no big deal! but the thing that makes me the most angry is that i didnt know what any of this meant till i started reading this forum! ive been trying to call her back since the 26th and she hasnt called me back. i mean i dont even know what type of clotting disorder i have!!!! when i found out lovenox was a daily injection i almost fainted. what kind of a doctor would do this? i feel so in the dark and im terrified. i just tried calling again today and its her day off so i asked to speak to one of the other doctors and i was told no!!! what the hell???? i just want someone to read me my lab results and tell me what kind of clotting disorder i have so at the very least i can research it on my own online! is that too much to ask for? has anyonce ever had such a bad experience with a doctor?


Dpete79563 - January 30th, 2007 4:20 PM

Dear varoki,
I am so sorry to hear of your loss.. I can only imagine what it was like to go though what you went through. My sister in law had a similar issue and it was verry devistating to her. It sounds as though this Dr and staff are very unprofessional. I wonder if they had done any testing for clotting issues with your regular labs while you were pregnant (I am not sure if that is normal or not to do, but some people post here that they are further along and just found out they have a clotting disorder)
I personally have 2 issues with the MTHFR clotting disorter and a few other sticky blood issues- my stories are posted on the past few pages.
So on this issue of the dr and staff, I would march myself down there during office hours and demand to be seen by the dr who you were seing or to have an explinating by someone else in the practice. I think that these people often get desensatised and treat patients by the case number. I would not hesitate to show how upset you are with the handling of your situation. And then if you can, I would find another doctor- probally even a specialist like a reproductive endocronologist.
I personally am finding that there is not a whole lot known about these clotting issues and that doing your own research is a must!
I am sure as you read here about the lovenox, it is not that bad except I had a reaction to it and had to switch to a heprin injection which is basically the same thing. And about it being a "needle" I would gladly do it for the rest of my life if it meant I could eventually have another little precious baby of my own.
I wish you healing for your hurting and best of luck in the future!
Dawn


veroki - January 30th, 2007 4:56 PM

thanks for the reply. i am sooooo getting another doctor, this whole experience i have found them insensitive and non-responsive. as far as the lovenox thing goes,i will gladly take it if it means i can have a child i just didnt like that i had to learn all of this from a forum and not a doctor explaining it to me, it comes as a bit of a shock when you never even heard of it before. on saturday i did stop by the office and requested all my personal medical history so i can go somewhere else but they still havent given it to me yet. god i hate them. well as soon as i find out anymore on my situation i will keep posted.

oh yeah and to answer your question, no they didnt test for any of this during my pregnancy though i think they should make it one of the standard test they do, maybe id still have my son if they did. :'(


Bridget - January 31st, 2007 12:19 PM

[quote author=Dpete79563 link=board=13;threadid=1981;start=405#31262 date=1170094624]
Good news and then something that makes me nervous... Just posted that I saw the heart beat today at 6 weeks for the first time... but then in the blood results my hcg has taken 6 days to double and progesteron has dropped from 39 to 23! I am waiting to hear back from drs office to ask if I should be worried. What do you all think?
Dawn
[/quote]

Hi Dawn,

Not sure about the HCG, but my progesterone to start was 11.5 at four weeks and after using progesterone suppositories until week 9, my progesterone only went up to 16. The doctor said that was fine, not everyone has high progesterone and that the placenta had already taken over at around week 9 for me and the baby was fine. I am now in my 18th week and all of my ultrasounds have checked out. Hope that helps! Good luck!!

Bridget


julia c - January 31st, 2007 2:12 PM

veroki,

That is a terrible story and unfortunately I have a similar one. When my husband and I were stationed in Texas I was pregnant for the 4th time (I had a baby and then a m/c and then a low birth weight baby 4lbs full term) I started to bleed and at about 17 weeks so I went to the emergency room and had a 9 hour traumatizing ordeal to long to explain. They sent me home but I returned a few hours later because the pain and bleeding was so bad. It turns out I was in labor. Needless to say the baby didn’t make it. I wasn’t told the sex or weight I was just told they were going to do lots of test. Well….they lost the baby…yes I said lost the baby, so no testing was done and no explanation was given. I am now pregnant for the 8th time and I only have three children to show for it. I only found out I had a clotting disorder recently because I finally had two m/c in a row (the others were separated by live births) in the medical community it is uncommon to test for anything until there has been at least two consecutive miscarriages, so in that since you are lucky they even tested for anything!! Most docs would have waited to see what would have happened with your next pregnancy. I think your dr sucks but stories like ours are not that uncommon.
Julia


veroki - January 31st, 2007 2:47 PM

julia,

im sorry for all the losses you had to endure. i did notice that when i read some of the other posts that most people didnt get tested till the had multiple pregnancy losses, so i know in that im lucky. i think when i flipped out on them when they told they could find anything wrong with the baby made them test me to shut me up otherwise i still might be sitting here with unanswered questions. i cant believe they lost your baby, i am in shock and disgust! cant you sue them for that? that is negligance to a whole another level! what idiots! its just so sad that my story isnt uncommon and it just makes me have such distrust in the medical community. still no call yet from my stupid doctor, i think im gonna call again right now and bug them. well ill let you gys know when i find out anything.
take care.

Veronica


TaraMay07 - January 31st, 2007 2:58 PM

[color=Maroon][/color]Hello Ladies and Gents~
I am currentlypregnant for the fifith time and only have one child a son who is 14 months old. I had my last m/c and D/C in Septmber of 06. My husband and I had been trying to get pregnant with our last child since our son was three months old, seeing that we wanted them to be close in age.. needless to say I was devistated when I lost our (what we know now ) second son at 13w. And because that was my third m/c..two before my son Aaron and then one following....We had testing done on me afterwards and found out that I have liden Factor5, prothrobian factor 2 mutation and both genetic mutaions of MTHFR... so here we are 5w 4d and I started today 40mg of lovenox(for the first time..boy does it burn...surprise!!!) and since nov have been on daily 81mg baby asprin..and I am scared..But coming across this forum today has put a lot of my fears aside..I thank god for my son and hope for a little girl this time around.. and will be praying for myself and all who are inthis forum for it is us who need much prayer..So good luck ladies and I will keep everyone posted on how we are doing
Tara May :-\


veroki - January 31st, 2007 3:51 PM

i cant belive this shes gone for the day, again!!!! you cant imagine the hate that is boiling my my blood at this very moment. im never going to find out whats wrong with me if it were up to them. im about to explode.


elvira - January 31st, 2007 4:23 PM

veroki,
i am sorry about your loss. I haven't had to go through anything so devestating and pray that I never do. My thoughts and prayers are with you.
On the thing with your drs, I am not sure but could you find another dr and have them get your files and everything. Just a thought. I am blessed to have a wonderful dr and can't imagine the frustration you must be going through. Good luck and let us know what happens.


veroki - January 31st, 2007 8:56 PM

ok so my doctor still hasnt called me but i did end up getting my medical history mailed to me and its really hard to read the reports but it looks like i am heterozygous PAI-1 5G/4G Allele ??? does anyone know what this is? is it genetic? next to it they wrote lovenox 40mg......


aefthimiadis - January 31st, 2007 9:08 PM

Veroki here is a link that I thought may be helpful for you. http://www.greenjournal.org/cgi/c
ontent/abstract/99/2/333

I
am sorry for what you have been through. I have also had two miscarriages one at 12 weeks and second at 6 weeks because of blood clotting. I switched doctors after the first doctor acted like a jerk. I went to a high risk pregnancy specialist (he deals with recurrent miscarriages) and he has been wonderful. I suggest you take your results to a hematologist and he will tell you exactly what you need to do when pregnant again.....and definitely find a new ob/gyn.


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